more than just a story of survival

more than just a story of survival

"Altho I had support around me, I had never felt so alone."

"Altho I had support around me, I had never felt so alone."

After sitting in my Son's hospital room watching him sleep, his eyes soft and relaxed, with his newly inserted nasal gastric tube taped firmly on his cheek. My heart was heavy, Yes, he finally had a full belly and a monitor no longer beeping constantly at us, I knew this tube has done what it needed, but it hurt to so much to see him like that. I had no idea how long he was going to need it, but it finally just felt like his body was calm, relaxed and content. Something we hadn't seen in him for a long time

 I guess he has a real chance at living his fullest life with this tube... but how would we cope with this?!? His sister was coming in the next morning to visit and my heart sank once again. Knowing that she wouldn't understand what this meant and how this would give her little brother that much needed nutrition that his body so desperately needed. So late at night I sat there cutting out teddy bears off IV tape stickers as this is all the nurses could suggest, to try to help his sister in the morning. To not worry about how sick her brother was. 

Altho I had support around me, I had never felt so alone. The day his first tube was placed i remember calling my husband and us both crying over the phone, scared and feeling like we had failed as parents.

This is how Little Bubba Brave began. As a mum with a medical needs baby, my life evolved around things that were scary, heart breaking and confusing. Something I didn't want others to feel if I could help in any way?

It was the most simplest of changes, adding these bears, but yet it seamed to add joy and excitement in a time that's dark, unknown and difficult. 

Then in 2021 we embarked on our biggest project yet. We bought a caravan to travel Australia, with the aim to bring tubie families together. To bring pride, beauty and a sense of community into the tubie world. We want every tubie to have their moment to shine. To smile and feel proud of something that's been out of their control. We will be hosting photoshoots for tubies all around Australia. Those living with tubes should never feel alone or left out. They should feel part of something special and unique. This is why we have embraced the name "The Travelling Tubie Project."

At The Travelling Tubie Project our mission is to include all. To give joy, spread love and not hid away, to make sure that even those with different needs can still celebrate and style their world, show off and be proud of who they are. We are proud of how hard they fought. So they should be given a reason to smile.

From teddy bears to now endless creative possibilities, with the tapes we print. We have worked around the clock, researching, testing, trailing and now can say we finally have a product that we are proud of and want to share it with the world. Welcome to The Travelling Tubie Project, tapes, clips and now community, for all types of tubes.  

Your story may just be beginning, but take hold of it with two hands and make it your own. 

Much Love Chloe xx